Healthcare Quarterly

Healthcare Quarterly 26(4) January 2024 : 24-30.doi:10.12927/hcq.2024.27257
Innovations in People-Centred Care

The Price of Love: Understanding the Financial and Psychosocial Costs of Caring for Children with Medical Complexities

Chantal Krantz, Michele Hynes, Amélie DesLauriers, Lillian L. Kitcher, Teresa MacMillan, Diane Paradis, Susan Mendelsohn and Susan Curry

Abstract

Parents of children with medical complexities (CMCs) report significant challenges affecting their financial, emotional and social well-being in relation to caring for their child's medical needs. The Complex Care Navigator Program was designed to provide social, emotional and economic support to parents of CMCs. This paper describes the results and outcomes of the program and the challenges experienced during the evaluation process. Overall, results suggest that the program had a positive impact on the parents' psychosocial functioning and social connections. The results demonstrate the importance of providing early screening, psychosocial intervention and peer support.

 

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