Upcoming Leadership Discussion

Friday, June 12, 2026 12:00 - 1:00 PM Eastern - Toronto, Ontario
Durhane Wong-Rieger, President and CEO, Canadian Organization for Rare Disorders (CORD),
Dr. Rebeccah Marsh, Senior Director, Strategy, Innovation, and Outreach, Institute of Health Economics,
Dr. Cheryl Greenberg, Healthcare Professional and Clinician Scientist, Interim Co-CEO, Children's Hospital Research Institute of Manitoba,
Alexandre White-Brown, Clinical Genetic Counsellor, Children's Hospital of Eastern Ontario and ThinkRare and
Moderator: Karen Heim, General Manager, Alexion Canada
Building on Progress: Charting the Future of Canada's Rare Disease Strategy

Leading experts and advocates will convene to discuss the critical insights, challenges, and opportunities in advancing Canada's National Rare Disease Strategy. Drawing upon key findings from a recent national study, panelists will delve into the economic burden, the profound impact of delayed diagnosis on patient journeys, and the imperative for improved pathways, access, and research. The aim is to generate actionable insights and solutions for a more effective and equitable rare disease landscape for all Canadians as we look ahead to 2027 and beyond.

 

From your own workspace via Webinar , Toronto, Ontario

Alexion

 

 

For sponsorship opportunites please contact Matthew Hart at 416-864-9667 x 113 or mhart@longwoods.com

Other events include Longwoods Breakfast Series and HealthcareRounds.

‘Longwoods Breakfast Series’ is offered up to ten times a year.

The Small Print

CANCELLATION POLICY:

Leadership Discussion cancellation requests must be submitted in writing to events@longwoods.com.

No-shows occur when individuals register but do not attend the conference and are not eligible for a refund. The Leadership Discussions Planning Committee reserves the right to make changes in programs and speakers, or to cancel the Leadership Discussion if registration targets are not met or when conditions beyond its control prevail. If the Leadership Discussion is not held for any reason, Longwoods Publishing’s liability is limited to the refund of the registration fee only.

SUBSTITUTION POLICY:

If you are unable to attend the Leadership Discussion, you are welcome to send a colleague in your place. There is no fee to make this change. Substitution requests should be sent to events@longwoods.com.

PHOTO/VIDEO RELEASE:

Longwoods Publishing will take photographs during Leadership Discussion events and utilize them in news or promotional material whether in print, electronic, or other media including longwoods.com. By participating in aLeadership Discussion event, you grant Longwoods the right to use your photograph for such purposes.