2010 Award Finalist

First Link® Demonstration Project 2007-2009

Category - Improving Access

The Problem

People with Alzheimer's disease and other forms of dementia often delay accessing information and service until late in the disease's progression, which results in reduced quality of life and increased risk of crises and caregiver burden. While various community services have been developed to provide support to family caregivers of people with dementia, too few families access services early in the disease's course. Many wait until they face a crisis before seeking help. This is due in part to a lack of awareness about available support services, but also to the stigma associated with dementia.

The Innovation

The First Link® Program was developed by the Alzheimer Society of Ontario to improve linkages between the Society, physicians, diagnostic and treatment services, and community service providers. The program is designed to improve coordination of care and linkages to community services earlier in the disease process, and to increase understanding and awareness of dementia and the resources that exist to help those affected and their families. The First Link® Demonstration Project was implemented as a collaborative innovation between Alzheimer Society Chapters across Ontario, primary care providers and other health care professionals. It was initiated to determine the extent to which the First Link® program objectives were achieved, assess the program's impact on people with dementia, caregivers and health professionals, and make suggestions for the improvement and sustainability of the program.

The Results

The Demonstration Project Evaluation found that those who were referred to First Link® were able to gain access to education and support almost one year before those who contacted the Alzheimer Society through traditional routes. The Evaluation also reported that First Link® clients feel more prepared, better armed with knowledge and better equipped to cope with their circumstance.

Next Steps

The Alzheimer Society of Ontario will continue to identify key performance indicators at the provincial level, work to incorporate new learning in all sites, explore opportunities for more consistent model of counselling services, and most importantly secure funding for the First Link® program in all parts of the province.

To learn more about First Link® in Ontario, visit www.alzheimerontario.org