Healthcare Quarterly

Healthcare Quarterly 17(3) October 2014 : 30-35.doi:10.12927/hcq.2014.24017
Special Focus On Family Caregiving

Caring for Caregivers of High-Needs Children

Allie Peckham, Karen Spalding, Jillian Watkins, Cindy Bruce-Barrett, Marta Grasic and A. Paul Williams

Abstract

The Caregiver Framework for Children with Medical Complexity, led by the Hospital for Sick Children, is a ground-breaking initiative that validates and supports the vital role of unpaid, family caregivers. The project uses a supported self-management model that includes a modest amount of funding to address pressing needs, and relies on Key Workers who provide ongoing education, counselling and care management to assist caregivers in planning over the longer-term. This paper describes the findings from a multi-stage, mixed-methods evaluation to examine the design and outcomes of the Caregiver Framework.

 

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