Healthcare Quarterly

Healthcare Quarterly 23(1) April 2020 : 34-38.doi:10.12927/hcq.2020.26141
Patient-Oriented Research

The Creation of a Tool to Measure Engagement in Patient-Oriented Research

Malori Keller, Christopher Plishka, Malcolm King, Janet Gunderson, Christine Andrews Stobart, Kate Dunn and Charlene R.A Haver


In 2017, the Saskatchewan Centre for Patient-Oriented Research (SCPOR) engaged patient and family advisors (PFAs) to review patient-oriented research grant proposals. The PFAs observed that the reviews would be less subjective if they were assessing the projects based on more rigorous criteria. Together the PFAs and SCPOR staff members developed a tool based on the Canadian Institutes of Health Research's Strategy for Patient-Oriented Research definition for patient-oriented research and the International Association for Public Participation's Spectrum of Public Participation. This article discusses the process of initiating a patient-identified project and co-creating the tool to indicate the level of patient-orientedness.



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