Healthcare Quarterly

Healthcare Quarterly 24(4) January 2022 : 40-47.doi:10.12927/hcq.2022.26712
Digital Consent and Privacy

Meaningful Digital Consent in Canada: Recommendations from Pan-Canadian Consent Management Workshops

Nelson Shen, Iman Kassam, Daria Ilkina, Sarah Wickham and Abigail Carter-Langford

Abstract

The digital health landscape is rapidly evolving with regard to how society accesses and interacts with digital information and technologies. With a largely commercial marketplace, there are growing concerns that users are not fully informed about how their data are used. Canadian privacy legislation is currently undergoing modernization to improve the transparency of commercial information handling practices through the introduction of meaningful consent. This paper reports on workshops held across Canada, exploring the implications of meaningful consent in a digital health context. Recommendations focus on measures to promote transparency, improve digital literacy and foster public trust in digital health innovations.

 

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